Patient Gastroenterology Resources

Gastroenterology Resource Links

Online resources for patients

If you have a gastrointestinal disorder, seeking understanding and support from loved ones, your healthcare professional, and support groups can be very comforting. Browse the following list of online resources to find more information, support, and support groups that may have a chapter in your area.

American Autoimmune Related Diseases Association, Inc (AARDA)

www.aarda.org
22100 Gratiot Ave
East Detroit, MI 48021
Phone: 586-776-3900 or 800-598-4668 for literature requests
Fax: 586-776-3903
AARDA provides information on various autoimmune-related diseases. You can read articles from AARDA’s newsletter, find tips on coping with an autoimmune disorder, and learn about upcoming special events.

American Cancer Society (ACS)

www.cancer.org
250 Williams St NW
Ste 450
Atlanta, GA 30303
Phone: 800-227-2345
The ACS provides information about current cancer research, grants, and awards as well as information on national affairs, legislative updates, and community involvement. The ACS offers a wide range of patient education tools, such as treatment options and ways to stay healthy.

American College of Gastroenterology (ACG)

www.gi.org
6400 Goldsboro Rd
Ste 200
Bethesda, MD 20817
Phone: 301-263-9000
Email: info@acg.gi.org
ACG provides consumer guides on various gastroenterological disorders and common problems, offers digestive health tips, and has a physician locator to find an ACG member in your area.

American Gastroenterological Association (AGA)

www.gastro.org
4930 Del Ray Ave
Bethesda, MD 20814
Phone: 301-654-2055
Fax: 301-654-5920
Email: member@gastro.org
The public section of this website offers a digestive health resource, a gastroenterologist locator service, and various helpful Web links.

American Liver Foundation (ALF)

www.liverfoundation.org
39 Broadway
Ste 2700
New York, NY 10006
Phone: 212-668-1000
Fax: 212-483-8179
The ALF provides a number of resources for patients, such as prevention information and a wide array of support services that include help line and support group information.

American Society for Parenteral and Enteral Nutrition (A.S.P.E.N.)

www.nutritioncare.org
8630 Fenton St
Ste 412
Silver Spring, MD 20910
Phone: 301-587-6315 or 800-727-4567
Fax: 301-587-2365
Email: aspen@nutr.org
A.S.P.E.N. provides general information about parenteral and enteral nutrition (PEN), and the site includes a directory of different PEN products.

Caring Connections (by the National Hospice and Palliative Care Organization)

www.caringinfo.org
Phone: 800-658-8898 or multilingual line 877-658-8896
Email: caringinfo@nhpco.org
Caring Connections is an initiative of NHPCO that provides a wide range of free materials about end-of-life care.

Children’s Digestive Health and Nutrition Foundation (CDHNF)

http://cdhnfsite.wms.cdgsolutions.com
1501 Bethlehem Pike
PO Box 6
Flourtown, PA 19031
Phone: 215-233-0808
Email: cdhnf@cdhnf.org
CDHNF offers information and resources for patients and parents of children with inflammatory bowel disease (IBD).

Colon Cancer Alliance (CCA)

www.ccalliance.org
1025 Vermont Ave NW
Ste 1066
Washington, DC 20005
Phone: 877-422-2030 or 202-628-0123
Fax: 866-304-9075
The CCA website contains information about colon cancer awareness programs and events as well as how to get involved with other colon cancer support groups and fundraisers.

Crohn’s and Colitis Foundation of America (CCFA)

www.ccfa.org
386 Park Ave S
17th Floor
New York, NY 10016
Phone: 800-932-2423
Email: info@ccfa.org
CCFA allows you to view the latest news about Crohn’s disease and colitis; learn about the latest biomedical research projects; ask physicians your questions about IBD; view general educational information about IBD; find your local CCFA chapter, support groups, and events; find a physician in your area; and read about books offered in their online book store. This site also has materials to make your advocacy and awareness efforts easier and enables you to send an email to your senator.

Crohn's Disease Resource Center

www.healingwell.com/ibd
Crohn's Disease Resource Center from HealingWell.com provides medical news and includes patient stories, discussion forums, and directories of websites for patients and family members.

Fight Colorectal Cancer

www.fightcolorectalcancer.org
1414 Prince St
Ste 204
Alexandria, VA 22314
Phone: 703-548-1225 or 877-427-2111
Fax: 202-315-3871
Email: info@fightcolorectalcancer.org
Fight Colorectal Cancer offers information about current colon cancer research news and how colon cancer research is funded. Fight Colorectal Cancer also has in-depth information about colon cancer political policy and advocacy groups.

Food and Drug Administration (FDA)

www.fda.gov
10903 New Hampshire Ave
Silver Spring, MD 20993
Phone: 888-INFO-FDA [888-463-6332]
The FDA allows you to discover information on foods and specific prescription drugs and to review safety alerts, recent product approvals, and more.

Foundation for Clinical Research in Inflammatory Bowel Disease

www.myibd.org
c/o Harris Baio & McCullough
520 S Front St
Philadelphia, PA 19147
The Foundation for Clinical Research in Inflammatory Bowel Disease (IBD) has provided support to the professional community for many years to encourage and enable continued clinical research into IBD and its treatments.

GetPalliativeCare.org (by the Center to Advance Palliative Care)

www.getpalliativecare.org
Center to Advance Palliative Care
1255 Fifth Ave
Ste C-2
New York, NY 10029
Phone: 212-201-2670
Email: capc@mssm.edu
This website is sponsored by the Center to Advance Palliative Care (CAPC), a national organization dedicated to increasing the availability of palliative care services in hospitals and other healthcare settings. GetPalliativeCare.org offers a wide range of information, including articles, news stories, videos, and a provider directory.

Hospice Association of America (HAA)

www.nahc.org/HAA
228 Seventh St SE
Washington, DC 20003
Phone: 202-546-4759
Fax: 202-547-9559
HAA is a national organization representing thousands of hospices, caregivers, and volunteers who serve terminally ill patients and their families.

Hospice Patients Alliance (HPA)

www.hospicepatients.org
4680 Shank St
Rockford, MI 49341
Phone: 616-866-9127
Email: patientadvocates@hospicepatients.org
HPA provides information about hospice services; directly assists patients, families, and caregivers in resolving difficulties they may have with current hospice services; and promotes better quality hospice care throughout the US.

IBD Support Foundation (IBDSF)

www.ibdsf.com
8806 Horner St
Los Angeles, CA 90035
Phone: 310-552-2033
Fax: 310-552-2025
Email: info@ibdsf.com
On IBDSF’s website there are several resources, including information about upcoming events, support groups, and informational videos that highlight services available to IBD patients and their families.

International Foundation for Functional Gastrointestinal Disorders (IFFGD)

www.iffgd.org
700 W Virginia St
Ste 201
Milwaukee, WI 53204
Phone: 414-964-1799 or 888-964-2001
Fax: 414-964-7176
Email: iffgd@iffgd.org
IFFGD provides information about gastrointestinal disorders, events, and meetings of consumer interest and links to other IFFGD educational websites, including www.aboutIBS.org.

Irritable Bowel Syndrome (IBS) Self Help and Support Group

www.ibsgroup.org
24 Dixwell Ave, #118
New Haven, CT 06511
Phone: 203-424-0660
Find local and online support groups, chat boards, book lists, and more on this site.

MedHelp

www.MedHelp.org
In MedHelp’s Medical Support Communities, you can read questions and answers on Crohn’s disease, ulcerative colitis, and other disorders, as well as access news articles from the library.

National Digestive Diseases Information Clearinghouse (NDDIC)

www.digestive.niddk.nih.gov
2 Information Way
Bethesda, MD 20892-3570
Phone: 800-891-5389
Fax: 703-738-4929
Email: nddic@info.niddk.nih.gov
NDDIC offers free publications about digestive diseases to patients and a phone inquiry line to answer your questions about educational materials.

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

www.niddk.nih.gov
Office of Communications & Public Liaison NIDDK/NIH
Bldg 31, Room 9A06
31 Center Dr, MSC 2560
Bethesda, MD 20892-2560
Phone: 301-496-3583
NIDDK allows you to access health information on various digestive diseases, information on the institute’s health education programs, and information about clinical trials.

North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN)

www.naspghan.org
PO Box 6
Flourtown, PA 19031
Phone: 215-233-0808
Fax: 215-233-3918
Email: naspghan@naspghan.org
NASPGHAN provides general information on pediatric gastrointestinal disorders, hepatology, and nutrition. It also offers links to other valuable resources and a pediatric gastroenterologist locator service.

Society of American Gastrointestinal and Endoscopic Surgeons (SAGES)

www.sages.org
11300 W Olympic Blvd
Ste 600
Los Angeles, CA 90064
Phone: 310-437-0544
Fax: 310-437-0585
Email: webmaster@sages.org
SAGES provides information on gastrointestinal procedures and surgeries and offers a Public Member Database.

Society of Laparoendoscopic Surgeons (SLS)

www.sls.org
7330 SW 62nd Pl
Ste 410
Miami, FL 33143-4825
Phone: 305-665-9959
Fax: 305-667-4123
Email: info@sls.org
SLS offers a member locator service.

Stop Colon Cancer Now (by AmSurg Corp)

www.stopcoloncancernow.com
AmSurg Corp
20 Burton Hills Blvd
Ste 500
Nashville, TN 37215
Phone: 877-706-7226
Stop Colon Cancer Now provides a wide collection of patient tools, such as screening information, a screening center locator, informational videos, and a colon cancer e-newsletter.

The information contained on this page is intended for US patients, healthcare professionals, and pharmacists only.

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