Online resources for patients
If you have a gastrointestinal disorder, seeking understanding and support from loved ones, your healthcare professional, and support groups can be very comforting. Browse the following list of online resources to find more information, support, and support groups that may have a chapter in your area.
American Autoimmune Related Diseases Association, Inc (AARDA)
22100 Gratiot Avenue
East Detroit, MI 48021
Phone: 586-776-3900 or 800-598-4668 for literature requests
AARDA provides information on various autoimmune-related diseases. You can read articles from AARDA’s newsletter, read tips on coping with an autoimmune disorder, and learn about upcoming special events.
American Cancer Society (ACS)
250 Williams Street Northwest
Atlanta, GA 30303-1002
The ACS provides information about current cancer research, grants, and awards as well as information on national affairs, legislative updates, and community involvement. The ACS offers a wide range of patient education tools, such as treatment options and ways to stay healthy.
American College of Gastroenterology (ACG)
PO Box 342260
Bethesda, MD 20827-2260
ACG provides consumer guides on various gastroenterological disorders and common problems, offers digestive health tips, and has a physician locator to find an ACG member in your area.
American Gastroenterological Association (AGA)
4930 Del Ray Avenue
Bethesda, MD 20814
The public section of this website offers a digestive health resource, a gastroenterologist locator service, and various helpful Web links.
American Liver Foundation (ALF)
New York, NY 10006
The ALF provides a number of resources for patients, such as prevention information and a wide array of support services that include help line and support group information.
American Society for Parenteral and Enteral Nutrition (ASPEN)
8630 Fenton Street
Silver Spring, MD 20910
ASPEN provides general information about parenteral and enteral nutrition (PEN), and the site includes a directory of different PEN products.
Caring Connections (by the National Hospice and Palliative Care Organization)
Alexandria, VA 22314
Phone: 703-837-1500 or 800-658-8898
Caring Connections is an initiative of NHPCO that provides a wide range of free materials about end-of-life care.
Children’s Digestive Health and Nutrition Foundation (CDHNF)
1501 Bethlehem Pike
PO Box 6
Flourtown, PA 19031
CDHNF offers information and resources for patients and parents of children with inflammatory bowel disease (IBD).
Colon Cancer Alliance (CCA)
1025 Vermont Avenue Northwest
Washington, DC 20005
Phone: 202-628-0123 or 877-422-2030
The CCA website contains information about colon cancer awareness programs and events as well as how to get involved with other colon cancer support groups and fundraisers.
Crohn’s and Colitis Foundation of America (CCFA)
386 Park Avenue South
New York, NY 10016
CCFA allows you to view the latest news about Crohn’s disease and colitis; learn about the latest biomedical research projects; ask physicians your questions about IBD; view general educational information about IBD; find your local CCFA chapter, support groups, and events; find a physician in your area; and read about books offered in their online book store. This site also has materials to make your advocacy and awareness efforts easier and enables you to send an email to your senator.
Crohn's Disease Resource Center (CDRC)
CDRC provides medical news and includes patient stories, discussion forums, and directories of websites for patients and family members.
Fight Colorectal Cancer
1414 Prince Street
Alexandria, VA 22314
Phone: 703-548-1225 or 877-427-2111
Fight Colorectal Cancer offers information about current colon cancer research news and how colon cancer research is funded. Fight Colorectal Cancer also has in-depth information about colon cancer political policy and advocacy groups.
Food and Drug Administration (FDA)
US Food and Drug Administration
10903 New Hampshire Avenue
Silver Spring, MD 20993
Phone: 888-INFO-FDA [888-463-6332]
The FDA allows you to discover information on foods and specific prescription drugs and to review safety alerts, recent product approvals, and more.
Foundation for Clinical Research in Inflammatory Bowel Disease
c/o Harris Baio & McCullough
520 South Front Street
Philadelphia, PA 19147
The Foundation for Clinical Research in Inflammatory Bowel Disease (IBD) has provided support to the professional community for many years to encourage and enable continued clinical research into IBD and its treatments.
Center to Advance Palliative Care
1255 Fifth Avenue
New York, NY 10029
This website is sponsored by the Center to Advance Palliative Care (CAPC), a national organization dedicated to increasing
the availability of palliative care services in hospitals and other healthcare settings. Getpalliativecare.org offers a wide
range of information, including articles, news stories, videos, and a provider directory.
Hospice Association of America (HAA)
228 Seventh Street Southeast
Washington, DC 20003
HAA is a national organization representing thousands of hospices, caregivers, and volunteers who serve terminally ill patients
and their families.
Hospice Patients Alliance (HPA)
4680 Shank Street
Rockford, MI 49341
HPA provides information about hospice services; directly assists patients, families, and caregivers in resolving difficulties
they may have with current hospice services; and promotes better quality hospice care throughout the United States.
IBD Support Foundation (IBDSF)
5850 West 3rd Street
Los Angeles, CA 90036
On IBDSF’s website there are several resources, including information about upcoming events, support groups, and informational videos that highlight services available to IBD patients and their families.
International Foundation for Functional Gastrointestinal Disorders (IFFGD)
PO Box 170864
Milwaukee, WI 53217-8076
Phone: 414-964-1799 or 888-964-2001
IFFGD provides information about gastrointestinal disorders, events, and meetings of consumer interest and links to other IFFGD educational websites, including www.aboutIBS.org.
Irritable Bowel Syndrome (IBS) Self Help and Support Group
24 Dixwell Avenue, #118
New Haven, CT 06511
Find local and online support groups, chat boards, book lists, and more on this site.
In MedHelp’s Ask the Doctor forum, you can read questions and answers on Crohn’s disease, ulcerative colitis, and other disorders, as well as access news articles from the library.
National Digestive Diseases Information Clearinghouse (NDDIC)
2 Information Way
Bethesda, MD 20892-3570
NDDIC offers free publications about digestive diseases to patients and a phone inquiry line to answer your questions about educational materials.
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Building 31, Room 9A06
31 Center Drive, MSC 2560
Bethesda, MD 20892-2560
NIDDK allows you to access health information on various digestive diseases, information on the Institute’s health education programs, and information about clinical trials.
North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN)
PO Box 6
Flourtown, PA 19031
NASPGHAN provides general information on pediatric gastrointestinal disorders, hepatology, and nutrition. It also offers links to other valuable resources and a pediatric gastroenterologist locator service.
Society of American Gastrointestinal and Endoscopic Surgeons (SAGES)
11300 West Olympic Boulevard
Los Angeles, CA 90064
SAGES provides information on gastrointestinal procedures and surgeries and offers a "Find a SAGES Member” in your area service.
Society of Laparoendoscopic Surgeons (SLS)
7330 SW 62nd Place, Suite 410
Miami, FL 33143-4825
Phone: 305-665-9959 or 800-446-2659
SLS offers a member locator service.
Stop Colon Cancer Now
20 Burton Hills Boulevard
Nashville, TN 37215
Stop Colon Cancer Now provides a wide collection of patient tools, such as screening information, a screening center locator, informational videos, and a colon cancer eNewsletter.
The information contained on this page is intended for US patients, healthcare professionals, and pharmacists only.